Original upload date: Mon, 04 Jun 2018 00:00:00 GMT
Archive date: Thu, 02 Dec 2021 02:55:41 GMT
Pa. state Rep. Perry Warren welcomed Newtown Township residents Anthony and Katie Ferrandino to the Capitol as the House unanimously passed the bipartisan resolution that he introduced along with Rep.
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Marcy Toepel designating June 4, 2018, as “Batten Disease Awareness Day”
Batten disease is a rare and fatal inherited disorder of the nervous system which typically begins in childhood. Symptoms of Batten disease can include vision problems, seizures and difficulties learning. The quality of life for those affected by Batten disease deteriorates over time. Unfortunately, there is no known cure for Batten disease and current treatments can only slow or delay certain symptoms.
The Ferrandinos founded Drew’s Hope to find a cure for Batten Disease. Warren hopes that bringing attention to this disease will lead to prevention, treatment and cure for the children whose lives are affected by this disease.
More at http://www.pahouse.com/Warren
